“Sometimes you will not know the value of a moment until it becomes a memory.”
—Dr. Seuss

 There were many small, joyful moments from our time in the PCICU with Eisley that I’ll hold on to as long as I can. For example, I won’t forget the few glimpses of her eyes that we were fortunate to see, the shaky finger she offered me one day as she attempted to swipe left and right on my phone to look at pictures, and the times when her heart rate would return to a somewhat normal level as I sang her lullabies. I also wanted to share a few big moments that I’m grateful for and will remember forever:

 Chinese New Year & Baptism – In early February, Eisley’s condition rapidly declined, and we thought we would lose her. True to her fighting ways, she pulled through. A few days after one especially scary time, I decided I wanted to have her baptized. If she didn’t make it out of the hospital, I didn’t want to have any regrets, and our priest graciously honored my last-minute request. As this event also fell during the Chinese New Year, I took the opportunity to dress Eisley in her China silks to honor a tradition that we maintain with our older daughter. I had been debating for weeks whether or not I should bring silks to the hospital and go through the formality of dressing her. It certainly wasn’t the easiest task with all of the tubes and wires connected to her! Thankfully, our wonderful primary nurse didn’t balk at my request and even went so far as to make Eisley’s bed with special blankets and dress her in her finest silks. My darling girl looked so beautiful!

 Valentine’s Day – After 40 days without holding her, on Valentine’s Day, I FINALLY got to hold Eisley. 40 days. No mother should ever have to wait that long to hold her child. I was on cloud 9 for the entire hour and a half that I held her and for the rest of the evening as well. Considering that we almost lost her the week before that, this time with her was especially poignant. Despite the tubes, lines, ventilator and everything else she was connected to that could have made holding her awkward, I didn’t hardly notice them. I concentrated on her face. She snuggled into my arms and it was if time stood still and the problems of the world melted away. Every now and then she would open her eyes, glance at me as if she was thinking, “Oh good, you are still here with me,” and then close her eyes again. I half-jokingly instructed a nurse to hook me up to a catheter and a feeding tube and I would just hold her for the rest of our time together.

 Eisley’s second birthday – As we approached March 8th, I wasn’t sure what to do about her birthday. She certainly wouldn’t even realize the significance of that day as she had probably never celebrated her first birthday. Plus, under such heavy sedation, she wouldn’t know we were celebrating anyway. However, I decided it was still a milestone that required a proper celebration; not to mention, it was an outlet for me to channel all of my energy in a positive way rather than focus on gravity of her deteriorating health condition. I made a special birthday outfit for her, as I wasn’t able to slip a onesie on her. That day, both she and her sister had matching Cinderella tutus and headbands! I crafted decorations for her door and room, and my mom and brother helped me bring in food for both the day shift and night shift nurses. Our family gathered to sing “Happy Birthday” to her. We even had photo booth props on hand and captured some fun photos with the medical professionals who cared for Eisley that day. For an entire day I didn’t once dwell on any of the ups and downs of her vitals, x-rays, new diagnoses, etc. I simply focused on honoring her. I even got some birthday snuggles! I’m forever thankful for everyone who helped make my crazy ideas reality, as it made that day so special and an enduringly happy memory for my family.

 It would be easy to dwell on all of the difficult, scary, and overwhelming times during our hospital stay. We certainly had a lot of those moments. However, perhaps these dark moments were necessary to reveal the value of those special, bright moments and bring an appreciation to those moments that may not have existed otherwise.

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 “Hope is being able to see that there is light despite all of the darkness.”
—Desmond Tutu

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2 thoughts on “Special Times in the PCICU with Eisley

  1. you don’t know me but i pray for your family. What amazing courage, strength and grace you have shown in the most unimaginable circumstances. As a mother, my heart breaks for yours. What a beautiful child and what an wonderful family.

    Like

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